Compromised Immune System-An Autistic Life

immune

It’s not often anymore that I write about what it means to have a kid with ASD (Autism Spectrum Disorder). It’s been our normal for the last 5 years (it’s actually been our normal Since the boy’s birth- but we have only known for about 5 years – he’s 10 1/2).  For the last four or so years he’s been on a regimen of supplements, not medications. And they have been awesome.  they have worked wonders for the boy. We work closely with his pediatrician and we monitor everything closely.  Now I’m sharing all of this not to get into debates or anything and I will not be sharing the supplements because I am not a doctor.  That’s not really the point of this blog post.

Immune System Attacked

The last six weeks however have been nothing short of a crazy roller coaster ride.  He has been to see medical professionals 6 times in 6 weeks.  That is not normal.   Six weeks ago he came down with a stomach bug, which is rare.  But when he gets a stomach bug he has to go off his supplements which are used to build up his gut health.  The supplements can be irritating on an empty stomach SOOOOO as you might imagine it does not help with the stomach bug.  Well 5 days came and went.  He was getting better and resumed his normal diet over that weekend, but by Monday night he was back to complaining about severe stomach pain, and before bed he tossed his cookies again.  He had  a doctor’s appointment where the doctor determined he had basically stripped the good bacteria from his digestive tract so he was put on a strict diet and had to take probiotics for about a week.  We slowly eased him back onto dairyBut he still could not handle the daily supplements. He went back to school that week there were conversations over the phone with his doctor.

That weekend James was away at his weekend respite.  We picked him up Sunday before church.  He was fine but he had a cough.  By Monday night I had 3 (yes three ) men  in my house who came down with Strep , by Wednesday that would become 4 men.  Bring on 4 rounds of antibiotics.  he finished his antibiotic and all of a sudden we are back to a stomach ache, and a cough that sounds like he has been a chain smoker for 50 years.   Monday morning he went back to the doctor.  Is it still the strep?  Why does he have extreme stomach Pain? (and other tummy issues).   The doctor examines him.  no strep. Post nasal drip. and the stomach thing- she believes it is a bad  yeast overgrowth in his GI tract. And yet a different probiotic was suggested with very strict rules about what to look for if issues should arise.  And a decongestant.

After just one dose of the decongestant I could see a difference.  He had three doses before school the next day and he left feeling better.  However when he walked in from school it was a different story.  He had blood pouring fro his nose AND his mouth.  I had never seen so much blood and I must confess I was freaking out. Because pinching his nose was not working.  I called the doctor.  The gave us instructions about what to look for in a GI Bleed and  said if it happened again to cal the after hours emergency number.  Well at 7 pm on the dot he was standing next to me while I plated their dinner.  He looked at me and said Oh no it’s happening again. I grabbed the phone and called after hours FOUR times and couldn’t get through so I finally called my hubby home and he took him to the ER.  Finally when he was almost home I got through . I explained the situation and they said theat someone would call me in 15-20 minutes. Hubby got home and took the boy.  45 minutes after I made the call a nurse called me back.  I was a train wreck.  I know that nosebleeds that don’t stop ad bleeding out the mouth are horrible things.  Through all of this emails went out to our church family.  People were praying and he gave us quite the scare.

Laughter and Blessings

In the midst of all of this I got a text message from a young mom in our church who was shaken by the whole thin. g She kept me company (via text messages ) for hours.  Her little one was sick too but her momma heart ached for us and our boy.  You see this boy has a very special relationship with many people in our church.  He was just a little over a year old when we moved here and our church has walked with through some pretty tough stuff since then.  Through all of this she made me laugh.  Which was much needed. Let’s just say that we discussed the finer parts of being sweaty…LOL.

Well finally the boy and his papa came home.  Upper nosebleeds with some ulcers.  I decided no decongestant for bedtime.  His nose did not bleed at all at night.  GI bleeds were ruled out though we still were instructed to watch for them due to the other issues.  In the end we discovered that the decongestant suggested by the doctor is what made  these nosebleeds so bad.  We went back to his normal dose.  he still has a cough..not as bad but it is still there and he is doing so much better.  AND he has been on his regular  supplements for 4 days!

We knew the boy has a compromised immune system, but we have never experienced anything like the last 6 weeks. We have dealt with other strange things like a crazy case of athlete’s foot and psoriasis.  Yeah I know !!!! His little body is just susceptible to anything and everything.  We have tried our best to keep him healthy. So when He was finally feeling better by mid-week we knew that he was going to be able to attend the concert we had planned on going to .  You see the boy is a huge fan of the NEWSBOYS.  and I must confess it was great to see him do his crazy dancing, singing and smiling throughout the whole thing!  It was even great to see him dance with Phil Joel after the concert

But that smile says it all. He was in his element because singing and dancing I am sure is his love language.   When he was first diagnosed a lot of wonderful people said “oh he will grow out of it”  Well he hasn’t grown out of it. And to be completely honest it keeps us on our toes (and our knees). God keeps working some very amazing things through this kiddo.  His heart to serve the Lord is a blessing to those who know and love him.  We hope and pray he will always embrace who he is and love people so unconditionally!

I know our journey isn’t over and I have no idea what lies ahead but I refuse to think about it.  I cannot spend my life and his thinking about the what-ifs.  I need to trust that God has his best interest in mind.  And in the midst of it all we will enjoy each and  every moment (MOSTLY LOL). Those who know about the  6 foot high fence and the window and door alarms know what I’m talking about!

So yes one of the many aspects of  an autistic life is a compromised immune system.

 

I’m Back- Happy Homemaker Monday 4-16-2018

Happy

Greetings friends.  It been awhile and let me just say Life kinda got turned on it’s ear.  But that’s ok we feel like we are mellowing out a bit and quite honestly I feel more focused than in recent months.  and I have some super cool things coming down the line including some nifty new blog content because even though I have been silent here doesn’t mean you haven’t been on my mind!  So I am  totally excited for the coming weeks!

So let’s jump  in and get Happy….

The weather:::. warmer and rainy.  I love the rain actually, but let’s not talk about tomorrow though.

As I look outside my window::: rain drops on the window, mud and green grass. BUT green grass is the only visible sign of spring here at our house

Right now I am:::  texting a company back and fourth about a video on my facebook account that they loved

Thinking and pondering:::bahahaaha I can’t believe I have to do this a second time ( my computer decided it needed to run an update right as I was proofreading the post the first time.  I lost 90% of the post so I am doing it again!

On my bedside table::: a few books including my new review book.  I CANONLY IMAGINE by Bart Millard

On my tv::: nothing BUT iTunes is keeping me company. which just happens to be Flawless by Mercy Me at this very minute!

On the menu for this week:::

Monday –  Pasta with meat sauce

Tuesday – Chicken and biscuits

Wednesday – Chili

Thursday –  Chef Salads

Friday – chicken Salad subs

Saturday – OUT we are headed out to a concert with friends from church

Sunday – BBQ Chicken Sandwiches with Potato salad

On my to do list::: the better question is what’s NOT on my to-do list

What I am sewing, crocheting, knitting or creating::: Lettering for a church bulletin board ( using the Cricut). video voiceovers and graphics for a ladies luncheon promotional video

My simple pleasure::: reading outside while waiting for the kids to get home from school

Lesson learned the past week:::  transparency is one of the greatest influencers on others lives

Looking around the house::: Spring cleaning is under way.  Itlooks like I’m organizing our life

From the camera:::

Prayer List::: I have some friends and family who are going through some really tough stuff & our son with Autism is having some health struggles that is keeping us on our toes

Bible verse, Devotional:::  Over the last few weeks I have been studying Esther and this week as I studied Esther Chapter 4 Was hit hard with some amazing truth about this young woman life as she went to from a person of little consequence to a woman of great influence.  And is’t that how God repeatedly works throughout scripture, he takes the least likely candidate and turns them into a great influencer!

For more Happy Homemaker posts check out Diary of a Stay at Home Mom.

Happy Homemaker Monday- Sleep Deprived but choosing to be HAPPY

Happy

Happy Monday…it’s kinda dreary here today.  But that doesn’t mean we cannot Choose to be Happy.  It’s hard at times, but in the midst of hard things we can choose to be thankful.  And when we have a heart of Thankfulness, happy creeps in

Breakfast time…what is on the plate this morning::::nothing

Looking around the house::::uh general straightening up.  it was a long and tiring weekend
On today’s to do list:::: rest, read, write, laundry, dishes and play practice
Currently reading:::: the Bible One thousand Gifts and a few others
On the TV today::::nothing

The weather outside is::::.cold ad gray, we even had freezing rain this morning
On the menu this week::::

Monday- Cicken Noodle soup
Tuesday-  Pork BBQ and potato salad
Wednesday- Beef Stroganoff and salad
Thursday Grilled cheese and tomato Soup
Friday Sandwiches

If I have a few minutes to myself, I will:::: begin my paper Christmas village

New recipe I tried, or want to try this week:::: no time for new recipes right now

One of my simple pleasures:::: reading by the fire in the wood stove
Favorite photo from the camera or internet::::

planner
Praying for:::: friends and family.   some going through some hard things, some making poor decisions…and the rest because I love them

Bible Verse, Devotional that is resonating with me at the moment::::

Hebrews 11:32-40 NIV

32 And what more shall I say? I do not have time to tell about Gideon, Barak, Samson and Jephthah, about David and Samuel and the prophets, 33 who through faith conquered kingdoms, administered justice, and gained what was promised; who shut the mouths of lions, 34 quenched the fury of the flames, and escaped the edge of the sword; whose weakness was turned to strength; and who became powerful in battle and routed foreign armies. 35 Women received back their dead, raised to life again. There were others who were tortured, refusing to be released so that they might gain an even better resurrection. 36 Some faced jeers and flogging, and even chains and imprisonment. 37 They were put to death by stoning;[a] they were sawed in two; they were killed by the sword. They went about in sheepskins and goatskins, destitute, persecuted and mistreated— 38 the world was not worthy of them. They wandered in deserts and mountains, living in caves and in holes in the ground.

39 These were all commended for their faith, yet none of them received what had been promised, 40 since God had planned something better for us so that only together with uswould they be made perfect.

For More Happy Homemaker Posts Check out Diary of a Stay at Home Mom

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Book Review : NIV Beautiful Word Coloring Bible Large Print

Book Review

Beautiful Words

The NIV Beautiful Words Coloring Bible  -Large Print  edition is published by Zondervan and has hundreds of scriptures for you to color.  It contains Artwork by 7 different artists.

Artists Include

  • Kerri Charlton
  • Jasmine Jones
  • Micah Kandros
  • Angela Reiss
  • Jay and Kristi Smith
  • Tiffany Zajas

There is an index in the back of the Bible that lists out under each artist the page numbers that include that specie artist’s Handiwork.

The book description claims

 “this Bible’s thick white paper with lightly ruled lines in the extra-wide margins provides ample space for your own artistic expressions and journaling.”

Te outside Cover is a cloth, sewn hardcover and comse in a beautiful cardboard box.  That leaves the navy blue cloth spine exposed.

Outside of what I have already described.  It is a normal Bible with coloring pages included.  I had a lot of fun with this book review.  It took some time and I made it into an experiment seeing just what new tools I could use in it.  NOW I have a confession before any further.  I had preconceived Notions about such Bibles and when I saw this one come available I was eager to kind of rip it apart…NOT literally though.  I had the idea that they were basically a one time use Bible.  What do you do with it when you have completed all the pages?  Do people actually read the text next to it?  Because let’s be realistic when I buy a Bible I want God’s word not fancy-ness next to it.  SOOOO all of that being said we are going to go through this baby and I will give you the break down according to the basic elements.

The Beautiful Cardboard Sleeve

Now I know toy are thinking Im nuts for even including this BUT. This is HUGE.  It is a tough box and it handled traveling to and from camp being shoved in a bag multiple times AND it serves a HUGE purpose, It helps to keep the light colored fabric CLEAN!  With four kiddos and a veritable zoo in my house it would not take very long to ruin the cover of this Bible.  So even after two months the cloth cover is still clean and Beautiful!

The Cloth Hardcover

Beautiful

The cloth, sewn cover is a lovely watercolor floral pattern with as I said before a Navy Cloth spine with white Script lettering. It is gorgeous but since it is so light I was constantly worried about it getting dirty.  So that cardboard cover did a Dandy job protecting the light cover. I would recommend storing it in it for protective purposes

The Paper

This is where things take a turn downhill.  The publisher claims thicker paper and I will grant them that it is thicker than most Bible pages.  However, there is quite a pit of shadowing by it’s very own ink without Clorox or pen ever being added. so much so that the faint gray journaling lines are hard to see if they happened to be opposite a thicker lined drawing.

Beautiful;

So I ran tests on the pages using various mediums

  • Colored pencils
  • gel pens
  • water color
  • regular graphite percils
  • Micron pens
  • G2 pens in .7 and 1.0
  • a regular old ball point pen
  • Markers
  • a Highlighter
  • a flair pen

and here is what I discovered….

every single one of them including the standard graphite pencil had shadowing opposite side of the paper.

Markers, watercolor and gel pens had moderate to sever bleed through.

AND if you used pencil with medium pressure you would get indentation as far back as 6 pages.  I did not use heavy pressure as I was afraid of  tearing the paper.

The Artwork

I loved the artwork.  It is pretty much all gorgeous, though I will say that if you are marketing a large print Bible you are trying to hit an audience with vision difficulties.  And some of the pictures have SUPER tiny spaces and gray lines versus some of the more dark lined artwork.  .  Now all of that being said I have a friend who owns the original smaller version of this Bible and we compared the two.  It is considerably bigger and darker.  so that really earned extra points

beautiful         

Overall

This Bible is beautiful

and I would recommend it.  I just would change (if possible)  the paper quality and the issues with marketing it as large print .  So for that I give it 4 art palettes out of 5!!

And a GREAT BIG THANK YOU  to BookLook Bloggers for give me a copy of this book to  review with no strings attached

Book Review : The Turquoise Table by Kristin Schell

TurquoiseFirst things first, ARE YOU A FRONT YARD PERSON? That is the question you will need to answer as you read Kristin Schell’s book The Turquoise Table.  In the Turquoise Table Kristin takes us on her journey to build community in her Texas town.  She chronicles he ups and downs  of being front yard people  as they began doing every day tasks at the turquoise table.  She gives practical advice on how to stock a simple basket to grab and go as you go to sit at the turquoise table , like crayons, coloring books, a can of mixed nuts, plastic cups and a water pitcher.  BUT Kristin ALSO includes family tested recipes at the end of each chapter !!  The chapters are short and sweet.  They get right to the point and there are many testimonials of others as they have embarked on their turquoise table journeys.  It was an easy and encouraging read that really makes the reader feel as though you can accomplish what is a seemingly scary risk, but with ease Kirstin melts away fears and doubts!

I  had heard about the turquoise table movement through blogging friends over the last few years but I had not been to Kristin’s Blog   or read anything official concerning the concept.  And even though I had never read anything by her I had decided that my carpenter hubby was going to make some picnic tables for our outdoor space, I new one of them would bee painted TURQUOISE!!!!

When I saw I had the option to review Kristin’s Book I knew I just had to and it did NOT disappoint.  I couldn’t stop reading!!!  Each chapter addressed different ares the Turquoise table touched in her life…even the table wearing out…WHILE SHE SAT ON IT!!!   Did I mention she was on camera as it happened?  SOOOO FUNNY!  The turquoise table has changed her, her family, her community, TEXAS and many around the world…no I am NOT kidding!!!   Being a front yard person may not be my personality type, BUT Im certainly going to give it a whirl!!!

This is definitely 5 star rating plus some!

Thanks BookLook Bloogers for giving me a free copy of this book to review and not expecting anything in return!